Tuesday, July 21, 2009

MORE NEWS FROM CAMP CRESCENT MOON

What a Great Day! I just received the most wonderful present of selflessness given to me...The Sickle Cell Camp at Camp Crescent Moon sang Happy Birthday to me. From Los Angeles to Emory Hospital in Atlanta, their voices rang loud and clear. My heart was so warm and my Soul touched. The Joys of Living!

Camp seems to be going well according to my sources...Tara, Portia (my daughters) and Mary (President and CEO also my sister-in-law) According to them, The camps theme is "Hollywood by day, Super-Hero by Night". They are seeking a villain who roams the camp.

Last night they enjoyed a scavenger hunt to find leads about the villain and trying to rescue the princess. To say the least the Boys won the scavenger hunt.

There are 75 campers along with the staff, volunteer counselors, nurses, doctors and a host of others...including a film crew...filming the video. All come together to make sure that the Kids are in the most comfortable environment possible. The staff is terrific and the Kids are so appreciative.

One of the staff overheard two of the boys talking...One asked the other "do you have sickle cell?" The other answered, "yes". He said, "Do You?" "How about that." This is what camp is all about...The recognition that each one of us is not alone and the acknowledgement that our disease should not be something we are ashamed of. Until we see this as a community and show ownership Sickle Cell will always be looked upon as an orphan disease. That's why I love this camp. It is an opportunity for the youth who are affected by a devastating disease to spend a week not thinking about how they feel and how dependent they are on family and caregivers. They also have a week to dream and believe that all things are possible. God Bless Them All.

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