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Continuous outreach is the only way we will gain momerntum and find a cure for SCD.
What can you do in recognition of this day? Maybe give blood at the Red Cross. Talk about SCD at your Church or a group setting. Visit someone in the hospital. Whatever it is, know that it will be appreciated.
World Sickle Cell Day
In the year 2008, the GeneralAssembly of the United Nations adopted a resolution which determines sickle cell disease as a public health problem and one of the world’s foremost genetic disease, requiring heightened awareness and activism, diagnosis and management. The result of the resolution was that June 19th was declared as World Sickle Cell to increase awareness of the condition all over the world.The World Health Organization (WHO) has started work on a war footing to promote a world wide agenda to address hemoglobin dysfunctions.
WHO has made a commitment to:
- Recognize that sickle cell disease is a major health issue.
- Increase awareness of the world community regarding sickle cell disease.
- Eliminate harmful and wrong prejudices associated with sickle cell disease.
- Urges member countries where sickle cell disease is a public health problem to establish health programs at the national level and operate specialized centers for sickle cell disease and facilitate access to treatment.
- Promote satisfactory access to medical services to people affected with sickle cell disease.
- Provide technical support to all countries to prevent and manage sickle cell disease.
- Promote and help research to improve the lives of people affected with sickle cell disease.
World Sickle Cell Day
The World Sickle Cell day is celebrated across the globe with special emphasis in African Nations and Asia. The celebrations include a press, media campaigns, music shows, cultural activities, and talk shows.Since no known cure exists for sickle cell disease, the main goal is to prevent further complications due to sickle cell disease. The main emphasis is hence on educating medical professionals, care givers, and associated personnel about prevention, research, and resources to minimize the complications due to sickle cell disease. Hence June 19th is devoted mainly to spread awareness, through talks, seminars, pamphlets, literature and consultations.
Taken From: AltiusDirectory.com
