Time To Get In The Game

Sometimes group Advocacy does not work. Individuals must have the courage to act! So let us put the pressure on. We need to support local Foundations, like Sickle Cell Foundation California. MY daughter Tara is a certified Counselor and my sister Mary Is the Pres & CEO.
I urge all of you to get involved.

Target: Members of United States Congress
Sponsored by: Sickle International Family S signature goal: 100,000
Signatures: 319n

In the United States, there are >80000 people affected with SCD. It affects 1 in 400nd 1 in 19000 Latinos and has a carrier rate of 1 in 12 and 1 in 100 for black and Latino populations, respectively.  In 1970, Scott  highlighted a substantial difference in the research effort for sickle cell anemia compared with other chronic childhood diseases, measured by the number of National Institutes of Health (NIH) grants. Scott  noted that there were 3 times as many grants for the more highly publicized conditions of cystic fibrosis and muscular dystrophy as there were for SCD
Sickle Cell Disease.
Sickle Cell Disease from the Patient Point of View  Follow-up to the meeting of October 19, 2009 with Mr.  Kareem Dale, Special Assistant to the President for Disability Policy.

Sickle Cell Disease: A Question of Equity and Quality Lauren A. Smith, MD, MPHa, Suzette O. Oyeku, MD, MPHb, Charles Homer, MD, MPHc, Barry Zuckerman, MDa



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